Dealing with the fallout of ED

What are your fears? Ideas? Hints? to coping with ED. What helps you with your mental game? How are relationships affected?
Accutane2020
Posts: 42
Joined: Wed Mar 04, 2020 5:53 am

Dealing with the fallout of ED

Postby Accutane2020 » Tue Mar 10, 2020 5:07 am

Hi Guys

To cut a long story short, after taking a prescription drug for the better part of a decade I now find myself in the strange position where I have zero libido and severe erectile dysfunction (no longer responding to pills). The prospects of this improving over time, from looking at other patients who have been in similar positions, are not good.

The mental aspect of this has been completely overbearing in the last few weeks after several years of papering over the cracks. How have you guys coped with these long term challenges in your personal life? As a 24 year old it’s pretty overwhelming to think that the rest of my life is going to be characterised by a situation most average guys don’t really envisage.

Aside from the practical solutions of implants and injections etc, have people spoken to councillors or psychologists to any great success? This situation is also taking its toll on people around me and I feel a sense of guilt that my abuse of a medication has resulted in my being in this situation.
Mid 20’s. Titan 22 cm + 1.5cm RTE. All good so far.

Hero83
Posts: 19
Joined: Fri May 11, 2018 2:45 pm

Re: Dealing with the fallout of ED

Postby Hero83 » Thu Jun 18, 2020 11:17 pm

Hey I just want to encourage you to try to keep hope, I had to find a good medical team but when I did they helped me a lot! I take daily cialis and do injections and its going well. Also ive spoken to a therapist about my sexual issues and it was helpful with processing the complex emotions related to sexual dysfunction. As for the regret you feel, I think many of us have those in at least some ways and its understandable, but we are human beings prone to mistakes at our best. I wish you the best of luck! If I can be of help on here let me know and take care
35 years old. ed began slowly around 30, began pills age 32 tried diet exercise and herbal supplements for over one year, symptoms worsened and pills much less effective by 34. Currently on daily cialis and pge1 injections. Considering shockwave therapy.

Robert-CA
Posts: 32
Joined: Sat Oct 15, 2016 5:19 pm

Re: Dealing with the fallout of ED

Postby Robert-CA » Tue Jun 23, 2020 1:26 pm

The psychological impact of ED can be severe, and it's not often talked about. It's OK to talk about it... most men with ED experience this, at least to some degree. It can also have a profound impact on your relationships.

The thing about psychological problems is that they need to be dealt with. They don't get better by papering them over.

If you have a partner, talk to her or him about how you are feeling, and encourage them to share their feelings.

I'd also strongly advise you to talk with a sex coach, counselor, or therapist. I've been told by a good friend who is a sex coach that depression resulting from ED is the most common problem she sees.

As far as the loss of libido, there could be a medical cause for that. Talk to your doctor - you may have low testosterone.

Flavio
Posts: 889
Joined: Wed May 19, 2010 4:56 am

Re: Dealing with the fallout of ED

Postby Flavio » Sun Sep 13, 2020 10:05 am

One word: information. Knowledge is power and the more you know about ED, the less stressful it will be. Talk to doctors, read books (anything written by the brilliant urologist Tom. F. Lue is a must), visit good websites. And no, this is not the end of the line for you: I know the feeling and it is extremely common but ED is, in fact, easily treatable.
Age 40. Psychogenic ED for over 20 years. Current regimen: Udenafil 200 mg, oral phentolamine mesylate 40 mg, Seredyn.

Martin6469
Posts: 486
Joined: Tue Feb 18, 2020 12:22 pm
Location: St. Louis, USA

Re: Dealing with the fallout of ED

Postby Martin6469 » Sun Jul 18, 2021 9:37 pm

Accutane2020: Don't know if this is your situation, but when I started my sex life, late teens, with no physical problems, I would have ED with girls who were a little chubby. I slowly figured out that my subconscious demanded, not preferred, women with my body type: thin. With them I had no problem. Our minds can be crazy!

Robert-CA is right: get testosterone checked by a G.P., urologist, or endocrinologist.
Age 78 in 2023. On testosterone replacement due to hypothalamus malfunction. (Attention depressed guys: low testosterone is a cause.) Healthy health nut but ED due to getting old. Like to keep enough cardiovascular ability to thrust for 30 min.

Lost Sheep
Posts: 6133
Joined: Mon Jul 04, 2016 11:16 pm

Re: Dealing with the fallout of ED

Postby Lost Sheep » Wed Jul 21, 2021 1:43 pm

Accutane2020 wrote:Hi Guys

To cut a long story short, after taking a prescription drug for the better part of a decade I now find myself in the strange position where I have zero libido and severe erectile dysfunction (no longer responding to pills). The prospects of this improving over time, from looking at other patients who have been in similar positions, are not good.

The mental aspect of this has been completely overbearing in the last few weeks after several years of papering over the cracks. How have you guys coped with these long term challenges in your personal life? As a 24 year old it’s pretty overwhelming to think that the rest of my life is going to be characterised by a situation most average guys don’t really envisage.

Aside from the practical solutions of implants and injections etc, have people spoken to councillors or psychologists to any great success? This situation is also taking its toll on people around me and I feel a sense of guilt that my abuse of a medication has resulted in my being in this situation.

Your signature indicates a Titan implant, yet your post cites "severe erectile dyfunction (no longer responding to pills)"

Please explain the apparent contradiction?

To answer your question about libido, have you had your Testosterone levels checked? Total Testosterone and free Testosterone, both. That can have an effect on libido, big time.

The love of a good woman (as opposed to the attentions of just any woman) can do wonders for a man's libido, self-esteem, energy levels (both sexual and general). Concentrate on being friends with good candidates. Miracles happen. And I don't mean erections. I mean happiness.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

steamfitter
Posts: 56
Joined: Mon May 31, 2021 10:47 pm

Re: Dealing with the fallout of ED

Postby steamfitter » Fri Oct 15, 2021 9:17 am

Accutane2020 wrote:Hi Guys

To cut a long story short, after taking a prescription drug for the better part of a decade I now find myself in the strange position where I have zero libido and severe erectile dysfunction (no longer responding to pills). The prospects of this improving over time, from looking at other patients who have been in similar positions, are not good.


I am in the same boat as you. I went on low-dose Accutane in late 2016 because a young female doctor put me on it. She insisted there were "no known side effects, even from long term use." Then several months later, in 2017, I had sudden, unexplainable ED and low libido. I went from being a borderline sex addict to being in your situation, and after I did my research and was horrified that this could be a long-term, if not permanent condition. When I went back to the doctor, she just said "Oh no... That's so unfortunate! How can I help you? I suggest we stop the accutane if that's what you want, but I don't believe there is any connection to the problems you're experiencing." It's amazing what a lack of empathy women have for male suffering.

We can't change the past, and we need to accept reality. The question is where do we go from here? I have had some encouraging success with various treatments, but their efficacy has waned over time. Also, literally any prescription drug I take seems to have a negative effect on my ED. I started taking Cialis a few months ago when I was dating someone. The first time I took it, it was amazing. However, it seemed like after I had only taken it once, my ED was slightly worse. This has continued. I recently took the pfizer vaccine for work. Again, ED is slightly worse (even though I can't find a single person who says they have side effects from it).

I am currently taking nothing for ED, as I'm not in a relationship or even dating and am just in limbo. I am also looking for solutions. To make things worse, I am in Canada, and even though I could pay for an implant in cash right now, I'll have to through years of referrals and surgery wait times to be in the position to get the surgery if I am even approved. That being said, I refuse to give up, and I am confident that something positive will happen when it is supposed to.

Lost Sheep
Posts: 6133
Joined: Mon Jul 04, 2016 11:16 pm

Re: Dealing with the fallout of ED

Postby Lost Sheep » Tue Oct 19, 2021 3:21 pm

steamfitter wrote:I am currently taking nothing for ED, as I'm not in a relationship or even dating and am just in limbo. I am also looking for solutions. To make things worse, I am in Canada, and even though I could pay for an implant in cash right now, I'll have to through years of referrals and surgery wait times to be in the position to get the surgery if I am even approved. That being said, I refuse to give up, and I am confident that something positive will happen when it is supposed to.

Unasked-for advice:

I recommend Vacuum Erection Device use (as therapy, not for sex). Frequent erections (achieved by whatever means works) has been demonstrated to keep penile tissues elastic, maintain size and flush oxygenated blood (not as much as natural erections, but some is better than none) through your tissues.

Good luck.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

abhishek26
Posts: 249
Joined: Sat Feb 20, 2021 12:23 am
Location: Florida

Re: Dealing with the fallout of ED

Postby abhishek26 » Tue Oct 19, 2021 5:17 pm

steamfitter wrote:
Accutane2020 wrote:Hi Guys

To cut a long story short, after taking a prescription drug for the better part of a decade I now find myself in the strange position where I have zero libido and severe erectile dysfunction (no longer responding to pills). The prospects of this improving over time, from looking at other patients who have been in similar positions, are not good.


I am in the same boat as you. I went on low-dose Accutane in late 2016 because a young female doctor put me on it. She insisted there were "no known side effects, even from long term use." Then several months later, in 2017, I had sudden, unexplainable ED and low libido. I went from being a borderline sex addict to being in your situation, and after I did my research and was horrified that this could be a long-term, if not permanent condition. When I went back to the doctor, she just said "Oh no... That's so unfortunate! How can I help you? I suggest we stop the accutane if that's what you want, but I don't believe there is any connection to the problems you're experiencing." It's amazing what a lack of empathy women have for male suffering.

We can't change the past, and we need to accept reality. The question is where do we go from here? I have had some encouraging success with various treatments, but their efficacy has waned over time. Also, literally any prescription drug I take seems to have a negative effect on my ED. I started taking Cialis a few months ago when I was dating someone. The first time I took it, it was amazing. However, it seemed like after I had only taken it once, my ED was slightly worse. This has continued. I recently took the pfizer vaccine for work. Again, ED is slightly worse (even though I can't find a single person who says they have side effects from it).

I am currently taking nothing for ED, as I'm not in a relationship or even dating and am just in limbo. I am also looking for solutions. To make things worse, I am in Canada, and even though I could pay for an implant in cash right now, I'll have to through years of referrals and surgery wait times to be in the position to get the surgery if I am even approved. That being said, I refuse to give up, and I am confident that something positive will happen when it is supposed to.

is it possible for you to come to USA just for the implant surgery since you are planning to pay for implant in cash anyways?
24 y/o suffering from sudden onset of severe ED (from previously having no ED at all). perfectly normal penile doppler and blood/hormone/urine test results. UPDATE: diagnosed with tight pelvic floor dysfunction :roll:

steamfitter
Posts: 56
Joined: Mon May 31, 2021 10:47 pm

Re: Dealing with the fallout of ED

Postby steamfitter » Wed Oct 20, 2021 10:26 pm

Lost Sheep wrote:Unasked-for advice:

I recommend Vacuum Erection Device use (as therapy, not for sex). Frequent erections (achieved by whatever means works) has been demonstrated to keep penile tissues elastic, maintain size and flush oxygenated blood (not as much as natural erections, but some is better than none) through your tissues.

Good luck.

Thanks.

abhishek26 wrote:is it possible for you to come to USA just for the implant surgery since you are planning to pay for implant in cash anyways?

Maybe one day, but not at this time.


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