Viewing the positive

What are your fears? Ideas? Hints? to coping with ED. What helps you with your mental game? How are relationships affected?
Hero83
Posts: 17
Joined: Fri May 11, 2018 2:45 pm

Viewing the positive

Postby Hero83 » Fri Feb 22, 2019 11:32 pm

I want to take a minute to say that I appreciate this community of online support. I get down sometimes by having ED, but being able to share on here and read has really made a difference for me. I'd also like to share with other guys dealing with these issues, if you don't currently have a partner and sexual issues are holding you back, I'd recommend being open and putting yourself out there. When my issues got worse and the pills lost effectiveness, I felt really down, but I met my girlfriend at work and we really hit it off. At first I was afraid to even approach her, due to negative thoughts about my sexual functioning and because she's very attractive. After our first date, i disclosed from the beginning about my issues. I didn't expect a positive reaction, but she's been entirely supportive the entire time. I'm very fortunate, she's beautiful and a good deal younger (21) and I'm honestly having the best sex of my life. When I get down, I try to remind myself that a good sex life is very possible with ED, I'm grateful that treatments exist, and it's nice knowing I'm not going through this alone (with my partner and with others on this site).
35 years old. ed began slowly around 30, began pills age 32 tried diet exercise and herbal supplements for over one year, symptoms worsened and pills much less effective by 34. Currently on daily cialis and pge1 injections. Considering shockwave therapy.

bldoink
Posts: 1680
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Viewing the positive

Postby bldoink » Sat Feb 23, 2019 12:14 am

Like!
R.R.P 2011 Mayo Jacksonville, Dr. Michael Wehle. Nerve sparing - badly damaged. C in margin. V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ ~ 12 units. Originally Edex20, then compounded PGE-1 - cost. Inject. ~ 8 yrs. It works. Treasure coast of FL.

ChosenOne619
Posts: 90
Joined: Mon Feb 18, 2019 5:22 pm

Re: Viewing the positive

Postby ChosenOne619 » Sat Feb 23, 2019 3:58 pm

Wow my friend you have courage.
22 year old male with Ed since I could remember. Tried sildenafil 20mg per pill went up to 4 pills didn't work and side effect were getting to me. San Diego, California where I reside

Lost Sheep
Posts: 2810
Joined: Mon Jul 04, 2016 11:16 pm

Re: Viewing the positive

Postby Lost Sheep » Mon Feb 25, 2019 9:28 pm

ChosenOne619 wrote:Wow my friend you have courage.

Wow, my friend, you have a gem of a woman.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017 Dr Shaw.
READ OLD THREADS to ask better questions and better understand answers.
Make yourself part of your medical team.
Document your current penile size: photos and written records.
Pre-op V.E.D. therapy helps.

Hero83
Posts: 17
Joined: Fri May 11, 2018 2:45 pm

Re: Viewing the positive

Postby Hero83 » Wed Feb 27, 2019 10:23 pm

Thanks for the replies! Ive honestly found it easier to discuss the issue with my partner and even some close friends. I didn't talk much about it for the first year when things started and I just felt so depressed and removed from life and the world. I was listening to something that discussed grief and it was recommended to talk about that which was being grieved as much as necessary. I applied that to my ED and it has really helped. I still have my moments and days where I feel depressed and it can get pretty dark, but ive been able to bounce back a lot faster after opening up about things. I don't feel alone anymore with this journey. I'm greatful to have my partner, she really is a gem! She's been supportive every step of the process. I've actually told her about the implant one time and that there's a good chance I'll need that one day. She smiled and told me she'll pump it up for me. My hope for this post is to reach out to other men that may be isolating themselves like I was. I'm not saying that everyone will be supportive, there are probably women that wouldn't be, but at the same time I do believe there are also women that are supportive. I'm dating one. Having sexual dysfunction is terrible. Just know that you aren't alone. Also, thanks to everyone that posts on here. I haven't been very active with posts, but I read many of them and it really helped me in ways you can't imagine. Best of luck to all and feel free to pm me anytime.
35 years old. ed began slowly around 30, began pills age 32 tried diet exercise and herbal supplements for over one year, symptoms worsened and pills much less effective by 34. Currently on daily cialis and pge1 injections. Considering shockwave therapy.

ChosenOne619
Posts: 90
Joined: Mon Feb 18, 2019 5:22 pm

Re: Viewing the positive

Postby ChosenOne619 » Mon Mar 04, 2019 12:03 am

Maybe you should try suppositories.
22 year old male with Ed since I could remember. Tried sildenafil 20mg per pill went up to 4 pills didn't work and side effect were getting to me. San Diego, California where I reside

ChosenOne619
Posts: 90
Joined: Mon Feb 18, 2019 5:22 pm

Re: Viewing the positive

Postby ChosenOne619 » Mon Mar 04, 2019 12:04 am

If you qualify you should go on prescription hope.com ive never tried it but I will let the forum know if it is legit.
22 year old male with Ed since I could remember. Tried sildenafil 20mg per pill went up to 4 pills didn't work and side effect were getting to me. San Diego, California where I reside

Hero83
Posts: 17
Joined: Fri May 11, 2018 2:45 pm

Re: Viewing the positive

Postby Hero83 » Tue Mar 05, 2019 10:49 am

I never thought to try suppositories, I may bring that up at my next appointment. As far as the prescriptions go, I'm fortunate because they are affordable now. I recieve my medication from compounding pharmacies in the US.
35 years old. ed began slowly around 30, began pills age 32 tried diet exercise and herbal supplements for over one year, symptoms worsened and pills much less effective by 34. Currently on daily cialis and pge1 injections. Considering shockwave therapy.

Lost Sheep
Posts: 2810
Joined: Mon Jul 04, 2016 11:16 pm

Re: Viewing the positive

Postby Lost Sheep » Tue Mar 05, 2019 11:45 am

Hero83 wrote:I never thought to try suppositories, I may bring that up at my next appointment. As far as the prescriptions go, I'm fortunate because they are affordable now. I recieve my medication from compounding pharmacies in the US.

I thought about penile suppositories. You insert a pellet or mixture (usually alpostrodil) into one's urethra. Less invasive than injecting. But I elected not to try that because my girlfriend at the time liked to perform oral sex on my and the idea of her swallowing any troubled me. And I wanted control of when the erection would end, also.

But it is a lot more convenient and cheaper than an implant.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017 Dr Shaw.
READ OLD THREADS to ask better questions and better understand answers.
Make yourself part of your medical team.
Document your current penile size: photos and written records.
Pre-op V.E.D. therapy helps.

Hero83
Posts: 17
Joined: Fri May 11, 2018 2:45 pm

Re: Viewing the positive

Postby Hero83 » Sat Mar 09, 2019 12:17 am

Yeah, I feel the same way. My partner also gives me oral sex and I wouldn't want that to be an issue. I sometimes stress about the cost of the implant procedure. The convenience of it would be nice though. My insurance doesn't cover implants so I'm glad that injections are working for me. It's a bummer that more insurances don't cover ED. I can probably afford a loan if it came down to it, but my other fear would be related to replacing future implants. Taking the loan on top of my other debt would hinder me from financing any future implant surgery. I'm trying to get my finances in order so that I have a solid nest egg by the time i need the procedure.
35 years old. ed began slowly around 30, began pills age 32 tried diet exercise and herbal supplements for over one year, symptoms worsened and pills much less effective by 34. Currently on daily cialis and pge1 injections. Considering shockwave therapy.


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