Pyronie's + ED = Implant (my story so far)

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pyronies_dave
Posts: 19
Joined: Sun Jun 24, 2018 3:43 am

Pyronie's + ED = Implant (my story so far)

Postby pyronies_dave » Tue Jun 26, 2018 4:31 am

My brief back-story is that I had mesh surgery on a large inguinal hernia (surgeon commented it was one of the largest he had seen) three years ago, and this left me with damage to the genitofemoral nerve. The pain was so bad that I was on morphine for 18 months, and sex was out of the question (an erection hurt like hell). Gradually this improved and now I am drug-free and discharged from the pain clinic, with just some nerve sensitivity around the surgery scar area. Thanks to my avoiding sexual arousal I didn't notice that during this time I had started to develop a bend in the penis.

Once off of the pain meds, it became apparent that something else was wrong: just holding myself to urinate was painful, and my erection was bent. Long story short, I was diagnosed with Pyronie's and started on Potaba and a provided with a vacuum pump. Six months on neither were helping and in fact, the bend was getting worse. I never managed to get a 'full' erection with the pump, and any erection I did manage was short-lived. Eventually, after a year and once the pain had stopped, I was referred to a specialist by my urology consultant. With two plaques, one causing a sideways twist and the other an upward bend measuring around 80 degrees, I was prescribed sildenafil. Whilst I can get a good erection using this, it is very short-lived (a minute or two at most) and I was diagnosed with ED. Ditto with the injections.

Because of the severity of the bend and the ED, I have been advised that graft surgery (with the ED risks it brings in any case) is not to be recommended - at least not in isolation. I am now waiting to see the specialist nurses for a pre-operative assessment in September before getting the date for a combined graft and penile implant procedure. The clincher being that my consultant surgeon, who is also a senior lecturer at the teaching hospital group in Leeds, reckons if he had the same diagnosis as me this is the surgery he would recommend for himself. All on the NHS, for which I am grateful. I'm sure I will be asking many questions in the months before the surgery date arrives...
54 year old UK-based, married, Peyronie's for two years. Awaiting NHS surgery (graft and implant) with Oliver Kayes at St James's Hospital, Leeds.

Greg1956
Posts: 1736
Joined: Sun Aug 06, 2017 8:35 am
Location: Atlanta, GA USA

Re: Pyronie's + ED = Implant (my story so far)

Postby Greg1956 » Tue Jun 26, 2018 6:35 am

First, I am sorry for all you have been through, but it sounds like you have a plan to correct the problem in the best way possible. I had the onset of Peyronies just before getting my implant, but my surgeon was able to remove the place during surgery and insert my AMS LGX and I have great results. Best wishes on your journey.

Greg
I am 64 and had ED from a VL. Implanted by Dr. Ronald Anglade in Atlanta on 9/18/17. I have an AMS700LGX 21 cm via a Penoscrotal incision. Very happy with results. 6" soft and 6 3/4” x 5 5/8” hard.

pyronies_dave
Posts: 19
Joined: Sun Jun 24, 2018 3:43 am

Re: Pyronie's + ED = Implant (my story so far)

Postby pyronies_dave » Thu Jun 28, 2018 4:39 am

Cheers Greg, truth be told I am scared as hell about the whole thing. The fact that the hernia surgery, such a common and relatively risk-free procedure, went so badly wrong and caused so much pain has put me on edge about any surgery let alone anything involving my gentleman's area! In fairness, the consultant surgeon in Leeds was very receptive to my concerns, but currently, I'm in that 'one day thinking the graft and implant surgery is the best long-term solution, next day just thinking about it makes me feel sick to my stomach' mode. I'm a journalist by profession and so used to researching subjects in a thorough and thoroughly objective way, but with this being so personal it's hard to stick to my own high standards and subjectivity creeps in. I'm sure I'll get my head wrapped around it all eventually and am helped by a very supportive partner who has remained with me these sexless years, was with me when the consultant recommended the implant and continues to provide both practical and emotional support on tap. Just can't shake those fears about infection and failure out of my head though...
54 year old UK-based, married, Peyronie's for two years. Awaiting NHS surgery (graft and implant) with Oliver Kayes at St James's Hospital, Leeds.


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