Pyronie's + ED = Implant (my story so far)
Posted: Tue Jun 26, 2018 4:31 am
My brief back-story is that I had mesh surgery on a large inguinal hernia (surgeon commented it was one of the largest he had seen) three years ago, and this left me with damage to the genitofemoral nerve. The pain was so bad that I was on morphine for 18 months, and sex was out of the question (an erection hurt like hell). Gradually this improved and now I am drug-free and discharged from the pain clinic, with just some nerve sensitivity around the surgery scar area. Thanks to my avoiding sexual arousal I didn't notice that during this time I had started to develop a bend in the penis.
Once off of the pain meds, it became apparent that something else was wrong: just holding myself to urinate was painful, and my erection was bent. Long story short, I was diagnosed with Pyronie's and started on Potaba and a provided with a vacuum pump. Six months on neither were helping and in fact, the bend was getting worse. I never managed to get a 'full' erection with the pump, and any erection I did manage was short-lived. Eventually, after a year and once the pain had stopped, I was referred to a specialist by my urology consultant. With two plaques, one causing a sideways twist and the other an upward bend measuring around 80 degrees, I was prescribed sildenafil. Whilst I can get a good erection using this, it is very short-lived (a minute or two at most) and I was diagnosed with ED. Ditto with the injections.
Because of the severity of the bend and the ED, I have been advised that graft surgery (with the ED risks it brings in any case) is not to be recommended - at least not in isolation. I am now waiting to see the specialist nurses for a pre-operative assessment in September before getting the date for a combined graft and penile implant procedure. The clincher being that my consultant surgeon, who is also a senior lecturer at the teaching hospital group in Leeds, reckons if he had the same diagnosis as me this is the surgery he would recommend for himself. All on the NHS, for which I am grateful. I'm sure I will be asking many questions in the months before the surgery date arrives...
Once off of the pain meds, it became apparent that something else was wrong: just holding myself to urinate was painful, and my erection was bent. Long story short, I was diagnosed with Pyronie's and started on Potaba and a provided with a vacuum pump. Six months on neither were helping and in fact, the bend was getting worse. I never managed to get a 'full' erection with the pump, and any erection I did manage was short-lived. Eventually, after a year and once the pain had stopped, I was referred to a specialist by my urology consultant. With two plaques, one causing a sideways twist and the other an upward bend measuring around 80 degrees, I was prescribed sildenafil. Whilst I can get a good erection using this, it is very short-lived (a minute or two at most) and I was diagnosed with ED. Ditto with the injections.
Because of the severity of the bend and the ED, I have been advised that graft surgery (with the ED risks it brings in any case) is not to be recommended - at least not in isolation. I am now waiting to see the specialist nurses for a pre-operative assessment in September before getting the date for a combined graft and penile implant procedure. The clincher being that my consultant surgeon, who is also a senior lecturer at the teaching hospital group in Leeds, reckons if he had the same diagnosis as me this is the surgery he would recommend for himself. All on the NHS, for which I am grateful. I'm sure I will be asking many questions in the months before the surgery date arrives...